FDA approves drug for treatment of rare mitochondrial disorder
FDA approves drug for treatment of rare mitochondrial disorder
4 months ago
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With the approval of Forzinity for Barth syndrome, umdf.org now officially has a MEDICATIONS drop-down on our website, which includes FAQs, prescription details, and coverage information. Explore at umdf.org/forzinity-elamipretide | United Mitochondrial Disease Foundation
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Connor is diagnosed with a deadly and mostly invisible disease known as Barth syndrome. This genetic condition weakens every muscle in his body including the heart. Connor wants his friends to know that there is a reason he struggles to keep up while playing. | Special Books by Special Kids
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