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Family Stories - Beyond Batten Disease Foundation
Nov 21, 2019
beyondbatten.org
5:48
Hollywood Producer Fights to Save Daughters From Rare Disease
May 6, 2016
ABC News
ABC News
2:39
Woodbridge, Ont., siblings fight rare terminal disease, hope for cure
Nov 1, 2019
Global News
Caryn Lieberman
2:32
Family fighting for cure after daughter's batten disease diagnosis
5 months ago
CBS News
Batten Disease Program
9 months ago
choc.org
Battin' for Batten, funding a cure for Juvenile Batten's Disease
Sep 16, 2018
ketv.com
3:31
7.5K views · 23 reactions | A gift in your will could unlock a future...
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1 week ago
Facebook
Action Medical Research
Batten disease: Fears drug treatment may be withdrawn
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channel4.com
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Family fights for a cure after batten diagnosis
5 months ago
MSN
WHAS-TV Louisville
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What is Batten disease? Doctor and family share insights on rare cond
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FOX 32 Chicago
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89 reactions · 112 shares | Twins Toby and Cory, and their little...
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Ultra rare ‘one-in-eight billion’ genetic disease hits 3 Alberta sibli
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Jun 23, 2021
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Ellery is diagnosed with a progressive and terminal disorder
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Dec 8, 2022
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Special Books by Special Kids
1:54
A family's fight for a cure after daughter receives rare, terminal di
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5 months ago
MSN
WQAD Davenport/Moline
A new children's book is helping families talk about rare, fatal Batte
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Dec 3, 2022
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FDA approves 2 breakthrough treatments for those living with si
…
Dec 8, 2023
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Dr. Darien Sutton-Ramsey,Sony Salzman
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9.9K views · 39 reactions | In the second video of this 5-part...
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1 month ago
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3 children with rare, fatal disease access treatment to prolong their l
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Aug 9, 2023
Global News
Children with rare genetic disease get world-first treatment to save si
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Jan 10, 2022
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Batten Disease: Why the Thoene Family Fundraises for BDSRA
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1 month ago
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